It is very courageous of you to open up on a public platform like this. When I read your response, my (probably inborn) reaction was, how how can I help Jo. But then I realized that intention and ability are two different pairs of shoes. It's a humbling experience, and certainly not the first of that kind. The only thing I can genuinely offer is empathy. But that's inconsequential and probably useless. I don't pretend to have an answer for your problem. The only thing I truly have is the genuine wish for you to either overcome or at least find a way to live with your ailment.